Katie Steedly’s first-person piece [The Unspeakable Gift] is a riveting retelling of her participation in a National Institutes of Health study that aided her quest to come to grips with her life of living with a rare genetic disorder. Her writing is superb.
In recognition of receiving the Dateline Award for the Washingtonian Magazine essay, The Unspeakable Gift.
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A String of Todays
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If I am not for myself, who will be for me? If I am only for myself, what am I? If not now, when? – Hillel the Elder
My Turner syndrome diagnosis at the age of 15 framed my understanding of now. It framed my understanding of why, too. My dreams and plans shifted and changed in that moment. I was forced to think about grown-up things when I wanted to think about getting my driver’s license and who was going with who in school. If having children could not be part of my plan, I would live differently than that. If I might have cognitive and social issues, I would prove that prognosis wrong. My string of todays started that day. I did not talk about the diagnosis. I was too scared. I did not research the diagnosis. I did not want to know. I just remember living differently.
What is my understanding of now and why today?
Now is fierce.
King talked about the fierce urgency of now. Our string of todays starts with right now. Small steps. Inches of growth. Second by second. Starting again and again. Failure by failure. Success by success. That is the challenge. There is a pace to now. The pace of now is the speed of morning. It is the marks on a kitchen wall showing how we grow. It is the constancy of the seasons, the drum beat of soldiers marching, the taste of watermelon in summer, the tide rolling in.
Know your why.
The urgency of now starts with knowing our why. Why we do what we do? Why we care about what we care about? Why we have been given the gift of life? Our why forms our purpose and passion. Our why must guide or days That is where now and why truly come together. When we know our why or now make perfect sense.
https://kitt.global/may-30-a-string-of-todays-mark-nepo-the-book-of-awakening/
About Katie
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From Louisville. Live in Atlanta. Curious by nature. Researcher by education. Writer by practice. Grateful heart by desire.
Buy the Book!
The Stage Is On Fire, a memoir about hope and change, reasons for voyaging, and dreams burning down can be purchased on Amazon.