Katie Steedly’s first-person piece [The Unspeakable Gift] is a riveting retelling of her participation in a National Institutes of Health study that aided her quest to come to grips with her life of living with a rare genetic disorder. Her writing is superb.
In recognition of receiving the Dateline Award for the Washingtonian Magazine essay, The Unspeakable Gift.
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My Annual Checkup for Turner Syndrome
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Since I moved to Florida 4 years ago, every year I travel 5 and a half hours from Miami to Gainesville for a doctor’s appointment at the Turner Syndrome Center at the University of Florida. After many years of patchwork health care from non-Turner Syndrome specialists -that often put me in the difficult position of coordination, translation, and advocacy – I decided to have my care overseen by a center that understands my unique health needs. I still call upon local health care providers for primary care and gynecological attention, but my overall care is handled by Turner Syndrome specialists at University of Florida.
About Katie
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From Louisville. Live in Atlanta. Curious by nature. Researcher by education. Writer by practice. Grateful heart by desire.
Buy the Book!
The Stage Is On Fire, a memoir about hope and change, reasons for voyaging, and dreams burning down can be purchased on Amazon.